Max is moving to the Paediatric Intensive Care Unit. There is a little blood in his trachy tube, probably as a result of too much coughing. He also gets VERY distressed while feeding (and pooing!), so in order to alleviate some of that stress, he is going to be fed by drip which means moving to the ICU.
There is no Patientline terminal in the ICU, so please don’t waste any money calling the number I gave earlier.
Max and Silvs are still in hospital, and it looks as though they may well be there for a few days. Max is still finding it hard to breath so is getting a little oxygen to make things easier.
It is not looking particularly good at the moment for the gastrostomy and airway investigation which are booked in for next Wednesday. We are assuming if he has not fully recovered from the infection by then that the op will have to be delayed. A real shame as it is not helping Max’s swallowing and it is a real pain to deal with for us, so the sooner it goes the better. Fingers crossed that it can still go ahead.
Silvs is needless to say getting quite bored in hospital, so any one feeling particularly flush might like to call her. She has one of these Patientline terminals, and they charge an exorbitant 50p per minute. Her number is 07046 200076 extension 7724. I am sure she would love to hear from you.
This is just a quick note to say that Max is back in hospital. Yesterday afternoon, Silvs became rather worried about his breathing – he seemed to be working very hard just to get enough oxygen.
She called the community nurse, who came quite quickly. They changed his trachy tube straight away which eased things a little, but Max was still struggling. They recommended taking him into Accident and Emergency. From there they admitted him, and Max and Silvs spent last night and all of today in the hospital.
It seems that he has a viral infection which is causing the difficulty, so we are just going to have to wait for him to fight it off. Helen (our community nurse) seemed to think it was unlikely that he would be coming home tomorrow.
Unfortunately his head has put on another growth spurt, so one of the doctors was going to talk to Kate (who has looked after him on the NNU). Nothing further seems to have happened about that at the moment, so we are waiting to see.
Hopefully Max and his Mum will be home soon!