Massimo was discharged from St George’s this morning and except for another 3 doses of antibiotics to finish off the prescription and some special cream for his trachy hole (stoma) which is looking very red and sore, he is back to himself.
The dogs were excited to see him and I am overjoyed to be home. The beds they provide for mums are foldaway beds with 2 half mattresses, sooooo uncomfortable, and in order for the nurses to be able to suction Max and feed him in the night for me, I had to sleep with the light on. Not very restful! So now we are back home and back to our own beds and our own routines, perhaps I will get less sleep but at least the sleep I will get will be good!
Tomorrow morning we are off to an appointment with the opthalmologist at Sutton Hospital. We are still trying to rearrange his gastrostomy, microlaryngobronchoscopy and ABR (?!? hearing test to you and me!).