Monday was spent just at home recovering from a fairly bad night as Massimo needed suctioning every 20 minutes. Tatie Lucy and Georgie popped in in the afternoon for a cuddle (and to measure up for curtains!). Tuesday we successfully did our first trachy change at home under supervision, and went for a lovely blustery walk in the afternoon.
Wednesday we were very brave and embarked on a major family outing, going to IKEA, Mothercare and Pets-at-Home. Max slept throughout the entire proceedings, only getting grizzly on the last leg of the trip home.
This morning after his 7 o’clock feed, Massimo had a major coughing fit and expelled his ng tube (tube in his nose for feeding). Luckily as his next feed wasn’t due until 11, there was plenty of time for Helen to come around and refit it. Sister Theresa Alexander from the NNU also came around and weighed him. He now weighs 4.06 Kg (8lb 15 in olde englishe units). She also measured his head which has grown too much again. There are possibly a couple of other symptoms of concern that Theresa reported to Kate, one of the consultants at the NNU, who suggested we come into the unit tomorrow for a check up. 
We have an appointment at Gt Ormond Street tomorrow, so not sure if we will make it to the NNU tomorrow or not. Our appointment at GOS is for a Bulbar EMG, which is some sort of nerve conductance test to see what is happening with his swallowing.
That’s all for now, I will try to report on the Bulbar EMG over the weekend.