All seems to be well in the Hope-Mason household so far. On Wednesday Great Aunt Karin and Grandpa visited as well as our neighbour Bernie. On Thursday Julia, the Speech Therapist, dropped in for a cup of tea on her way to work (she walks!) then Helen, the Community Children’s Nurse, popped in to check that all was well. In the evening, Massimo had his first bath at home and a trachy tie change. It was all very stressful and a glass of wine was had upon completion and a chinese take-away was deemed to be as much as we could muster, luckily Luisa didn’t mind!
Today Pat, the Health Visitor, and Leah, a Practice Nurse came to meet Massimo. They will be coming weekly to weigh him and measure his head circumference to monitor any further increases in his hydrocephalus. The good news is that Massimo now weighs 3.92 kg (8 lbs 10 oz), the bad news is that his head has grown too much again. Helen popped in again to drop off more equipment including a syringe stand for feeding time which could just make life a tad easier. This evening Patrick and Ceri dropped by as they were in the area and this time we managed to cobble together some sort of supper for us to share, so our first dinner party is done and dusted!
On Wednesday one of Massimo’s hands discovered the other, last night they discovered his mouth and tonight he was very alert in the evening and started looking around but with his head as well as his eyes. What a clever little boy!
More pictures will come soon I’m sure, but for the moment our hands are full with catheters, nappies and such like.