We saw one of the doctors on PICU at GOS yesterday afternoon and he said that they had hoped for a much better result from the steroids and that they can see no benefit from them at present. The infection seems to have gone and that is good. The main results from the bronchoscopy is that it is tracheal wall and as such cannot be removed. Further, neither a change of tracheostomy tube nor dilatation will help. The doctor was really quite pessimistic and basically it is up to the wee man to breathe properly and for himself.
His muscle relaxant was stopped yesterday morning, as much because he has been on it for too long and needs a break as to see how he breathes himself. He is still heavily sedated and on lots of morphine. He started to move and twitch last night and trigger a few breaths himself – this is when he starts the breath and the ventilator does the rest. Apparently he has opened his eyes this morning so we are off to see him now. We are also due to see the doctors again today.