(sent as an email)
I am sending a quick email to let you all know that Massimo came home this evening. He is still on 0.1 litres of oxygen but we are organising to have home oxygen and hopefully he will wean himself off it in the not too distant future. We are back at St George’s tomorrow for chemotherapy and to have Max reviewed as he keeps spiking a temperature (3 days in a row) and he could be heading for a fever, so they just want to check him out. The took bloods today so assuming he doesn’t show any signs of infection then he will remain at home. He is showing signs of teething but he has been for nearly 6 months already so I’m not holding out much hope, however he is spending most of his time rubbing his gums with his tongue and/or his fingers and as well as being very dribbly from the mouth he also has a terribly dribbly nose!
Most importantly, as some of you have probably already discovered, our great means of communication, Massimo’s website, is currently not working. Justin was upgrading the server this weekend and it all died. Luckily we have a back up of all the text but the photos might all have gone. I do have a print out (luckily) of the each month up to and including November (I think) so we hopefully have enough to recreate it. We hope to have something back up for you in a few days.