We saw the oncologist today at around 3 pm and the news is that the MRI scan shows little if any change in the size of the tumour. The chemo is not having the effect they expected. They will be discussing Massimo again at the next meeting next week as today they didn’t have copies of earlier scans and pathology reports etc. and so felt that they did not have a full picture from which to make any firm decisions. In the meantime there is also a big 6 monthly meeting of the UKCCG (UK Childrens Cancer Group) which Massimo’s oncologist will be attending and at which she will also discuss Massimo’s case. She is also hoping to be able to talk to someone who is a rare tumour specislist to discuss some alternative treatment options.
The overall feeling at the moment is that the tumour might respond better to one or two other drugs, however we won’t be trying any of these until after both of the meetings mentioned above. In the meantime we will continue with the chemo drugs that Massimo is currently on as they might be what is stopping the tumour from growing.
We are back on PICU at St George’s and Massimo has been off CPAP since 12.30 pm. He is also just on 0.5 Litres oxygen per minute which really isn’t very much.