Yesterday Massimo had his MRI scan in the early afternoon. We have not heard what it shows but it seems likely that they will be discussing the wee man during the oncology weekly meeting today and during the tracheal weekly meeting which is also held today. Hopefully one of those eminent doctors will call and let us know what their thoughts are! In the meantime, Massimo is still on CPAP and a tiny bit of oxygen. He is doing really well and I think that with an active weaning process he could be off the CPAP shortly. We are very keen to have him home for the weekend but this is looking less likely as the week marches on. The plan is to transfer him back to PICU at SGH at some point today, but this depends on whether transport can take him and assuming that PICU still have a bed later on today!
He has learnt to stick his tongue out, his rolling is vastly improved – he rolls more easily and goes slightly further over on each side. Apparently the physio had him lying on his tummy for a while and he got quite comfortable doing it bearing in mind that the trachy makes it something he would normally avoid doing at all costs! Yesterday I had him sitting up on my lap and I let go and he held the position really well. His muscles are getting much stronger and his willpower to learn and progress when he is well is phenomenal.