Every day since the meeting we outlined in the earlier entry, we have discussed with people: a) whether it is appropriate to continue to put Max through the trauma of repeated ventilation, and b) how we would like to handle the inevitability of his final episode of tracheal collapse. We are sitting down with people and discussing how we would like to handle the death of our son.
It is so unbelievable that at times it just doesn’t seem real. You can’t help but imagine, over and over again what it will be like. Are we really going to sit and watch our beautiful little boy draw his last breath, and be able to do nothing to prevent it?
However awful, this is the increasingly likely reality that we are having to come to terms with and, as this truth sinks in, it just gets harder. Thank you all for your messages of support, they mean a lot to us, even though we haven’t got time to respond to you, we are very appreciative.