We had a largely uneventful day at GOS today. Having arranged to meet up with the specialists at 1.00pm, we were called first thing by the ENT registrar who had had a look down Max’s trachy with a flexible bronchoscope, and I am guessing on the strength of what he saw, decided that a rather more in depth discussion was required involving more of Max’s specialists.
On Monday afternoon, when everyone had a look down Max’s trachy, the SGH ENT reg felt that the growth we were looking at (I had a look, along with the PICU consultant and Max’s respiratory consultant) was not the usual granuloma tissue caused by the end of the tube. The others felt that, on balance, it was more likely to be granuloma than tumour.
Although he didn’t say it, the impression given by the GOS ENT reg was that it doesn’t look like a granuloma and that therefore what was required was rather more than simply the use of a laser to remove it, hence the delayed meeting with more specialists.
We are off to GOS first thing tomorrow where we are, frankly, more than a little worried about what is in store.