On Saturday, after a fair few delays we returned to PICU at St George’s. It felt like we were coming home!
Massimo has unfortunately lost 500 grammes in the last 2 difficult weeks – the nurses noticed and decided to weigh him to check! And all his “normal” regime is back in action – feeding times, quantities, drugs, etc etc. It is also because he is better that all these things can in fact be changed back, but it is also a testament to how well he is known here at St George’s, and how important they think it is to get him back to as much normality as possible. Also all his intravenous drugs have now been replaced by oral drugs (I think this is only possible now because the quantities of the intravenous drugs have been reduced sufficiently) and today he was on oxygen and no CPAP for 4 hours in the morning and 4 hours in the afternoon. He was only on about 0.1 – 0.2 litres of oxygen which is an incredibly small amount, but in the morning he was on no oxygen at all! What a star!
He is still looking a little spaced out on the various drugs he is on and he still sleeps quite a lot but he is definitely getting back to his old self. He is much less floppy than he was as he is beginning to re-awaken his muscles but, although he probably knows we are there, it is quite difficult to tell.
He has had a fair few visitors, most especially his aunty (who is concerned that the title makes her sound aged and she isn’t!) is over from Toulouse, and he had long cuddles with her, Daddy and Mummy today. Also his nonno was with him for quite a large part of the afternoon.