We went to see Massimo today and he was the happiest, smiliest little boy. We haven’t seen him this well in over a month! He giggled happily at his mummy’s funny noises and at his daddy’s tickles. The physiotherapist came to see him (unfortunately whilst we were having lunch!) and they spent a happy 40 minutes on the floor – off CPAP and only on oxygen – practicing lying on his tummy and sitting up. His back and neck are getting stronger and he loves to be held sitting up, looking around. He is very popular on the ward as he is so well and therefore very interactive, bestowing smiles on all and sundry. Being an intensive care unit they are used to seeing very sick babies and going by the letters received from grateful parents they do amazing work. This is the unit where Massimo would have gone had he needed the ECMO machine we mentioned some months ago. Max is clearly not in need of intensive care at the moment, but they apparently don’t have any other appropriate beds available, so for the moment he is staying where he is.
From a medical point of view he has started a course of steroids and had two days of antibiotics until his bloods showed no infections and they were stopped. His RSV Bronchiolitis has also cleared up and gone away. His CPAP was reduced from a PEEP of 9 to 5 and tomorrow they are hoping to take him off CPAP again but for a longer period of time.
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