Yesterday we arranged to pop in to see the ENT Surgeon during his clinic which is held weekly on a Tuesday. Between an unsettled night worrying about Massimo’s breathing and a grumpy little boy due to the chemo, we didn’t get to SGH until about 12 noon(ish). Mr Daya took us straight in and he had a look down his trachy and into his trachea (flexible bronchoscopy) and said that there is some granulation visible at the bottom of his trachy but the tumour is not visible and that he thought that we would not have any problems before the chemo starts to take effect in about 6 weeks’ time. We have, however, arranged for someone from the ENT team to see Massimo every week just to make sure that his airway is clear and that if the tumour is visible, to organise putting in a longer trachy tube.
Having worked ourselves up into a bit of a frenzy since last night, we were expecting to be admitted so that Massimo could be close to oxygen should he need it. We also took it a step further and thought that we could see no way that they would discharge us for at least 6 weeks. Being home tonight with such good news is an enormous relief.
I forgot to say that Massimo has now learnt that he can make noises with his mouth and spends plenty of time playing with this new toy! He will be blowing raspberries before we know it!