Unfortunately Massimo’s temperature means that we are not being allowed to come home quite yet. It is possible that this temperature indicates an infection somewhere or it might still be a post-op reaction. He had no temperature overnight but it came back this morning so fingers crossed that it will go again tonight but won’t come back in the morning. Should he be without a temperature for 12-24 hours we will be allowed to come home. The only other impediment is that somehow, somewhere there has been confusion about his tracheostomy tube changes and some people seem to think that we can’t go home because J and I don’t know how to change the tube, others think that we can’t go home because there is a possibility that the granuloma will make a tube change difficult – the same granuloma that Mr Daya was going to laser on Wednesday but which has gone away of its own accord -and yet others are concerned that these warts mean that his upper airway is completely “compromised” and that it is unsafe for us to go home – yet his upper airway has always been “compromised” i.e. he could not and still cannot breathe through his nose and mouth. This is all a little frustrating and hopefully we can solve it to some extent by doing a routine tracheostomy change in hospital before coming home.
Other than that there is nothing much to report. We are both getting extremely irritated and irritable at being in hospital but we now have the buggy so a few strolls around the corridors of St George’s are in order. I am due back “inside” any minute now so will update you more on my next “release”!