MLB and MRI

Max and DaddyMax last had an MRI scan on 5th July and the MLB (or bronchoscopy) was before that, so it has been just over six months since anyone has had a good look at what is happening with Max’s tumour. His oncologist and ENT surgeon are keen to continue to look at the tumour routinely on a six monthly basis. Also, a couple of weeks ago Max seemed to be losing blood from his mouth and nose and on one occasion from his ear. Continue reading “MLB and MRI”

Red Balloon Nursery

Max ready to go to nurseryMassimo started nursery on Thursday afternoon. He was clearly not really aware of the momentous occasion and was totally relaxed in his buggy ready to go out. Max is supposed to wear a smock top over his clothes to go nursery but we haven’t received it quite yet. As soon as we do we will show you more pictures. All the following pictures were taken on his first day at nursery and the lady in the pictures with Max is his one-to-one teacher Orlaith who is absolutely brilliant with him but before I could post any pictures I wanted to get her permission first, hence the slight delay in the entry. Jemma stays at the nursery with him as his carer and looks after all the suctioning and feeding and all things medical. At the moment Max does spend most of his time on a one-to-one basis with Orlaith although he does join in with the group music lessons which he loves. Continue reading “Red Balloon Nursery”

The Christmas Holidays

Max and Luca playingOur holidays got off to a good start when we broke down on the M2 on our way to Dover. It was about 8.45 pm, Luca had fallen asleep but Max was still awake. We called the RAC and as we were on a motorway they promise to be with you in half an hour. They then put us through to a recorded message giving you safety advice which includes getting everyone out of the car and as far up the verge as possible. Continue reading “The Christmas Holidays”