Month: May 2005

On Wednesday 18th May we took Max and Luca to their first session at Monkey Music which Luca thoroughly enjoyed. Actually Luca got so excited he was bouncing up and down so much he made himself sick! Max on the other hand couldn’t believe that he was up and about at such an ungodly hour (it started at 9.30!) and refused to crack a smile for the entire 30 minute session! Continue reading “Monkey Music and More”

Since Massimo was born I have often been asked if I’ve seen Welcome to Holland. Finally I have received a copy and I have transcribe it for you below. I didn’t write this, I don’t know who did, but it is incredibly insightful. Continue reading “Welcome to Holland”

The new chair I mentioned in an early post finally arrived on Monday 25th April. We spent the day trying to set it up getting all the various supports and bits in the right place for Max himself. It wasn’t quite as easy or straightforward as one might think but we sort of got there in the end. We are waiting for one of his Occupational Therapists to come and set it up. Max has two Occupational Therapists, one is a paediatric OT and the other is part of Social Services and is in charge of authorising and ordering any equipment. So far no-one has been to see the new chair and we do have a few issues with it. The most important being that it will rock from side to side and forward and back, loosening all the bolts. Max thinks this is terribly funny and uses it as a passtime and also to move along the floor! Continue reading “Finding a School”

Just to let you know that the event raised a massive £11,878.14. Thank you to everyone who participated, helped and above all spent money!

Most especially thank you to Lucy, whose original idea it was and who put so much hard work and effort into organising it.

Also, congratulations to Lucy and Marco (pictured) who got engaged last weekend in a hot air balloon over Berlin!